Resetting Data Governance: Authorized Public Purpose Access and Society Criteria for Implementation of APPA Principles
In January 2020, our first publication presented Authorized Public Purpose Access (APPA), a new data governance model that aims to strike a balance between individual rights and the interests of data holders and the public interest. It is proposed that the use of personal data for public-health purposes, including fighting pandemics, be subject to appropriate and balanced governance mechanisms such as those set out the APPA approach. The same approach could be extended to the use of data for non-medical public-interest purposes, such as achieving the United Nations Sustainable Development Goals (SDGs). This publication proposes a systematic approach to implementing APPA and to pursuing public-interest goals through data use. The approach values practicality, broad social agreement on appropriate goals and methods, and the valid interests of all stakeholders.
In January 2020, our first publication presented Authorized Public Purpose Access (APPA), a new data governance model that aims to strike a balance between individual rights and the interests of data holders and the public interest. It is proposed that the use of personal data for public-health purposes, including fighting pandemics, be subject to appropriate and balanced governance mechanisms such as those set out the APPA approach. The same approach could be extended to the use of data for non-medical public-interest purposes, such as achieving the United Nations Sustainable Development Goals (SDGs). This publication proposes a systematic approach to implementing APPA and to pursuing public-interest goals through data use. The approach values practicality, broad social agreement on appropriate goals and methods, and the valid interests of all stakeholders.